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Episode 29
Marissa Cors is a fierce Sickle Cell Disease advocate. She is a 5th generation SCD Warrior and her family has a non profit called Axis Advocacy.
We first heard about Marissa when one of her Tik Tok videos went viral about a SCD patient, Brittany. Brittany was horribly mistreated, and recorded her mistreatment. Brittany sadly lost her life to SCD. Marissa was her advocate. Marissa's Tik Tok channel is called Escaping Sickle Cell Hell.
The clips from Brittany's ER experience can be heard in their entirety here..
For behind the scenes discussion with Marissa, please go to The DPF Patreon page.
Disclaimer: The information in this podcast is not to be considered medical or legal advice
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Episode 28 - Bonus - 7/30/23
Dr. Carl Hart was a guest on our podcast earlier this year. Here is the link to the episode, in case you missed it.
Dr. Hart contacted us last week with some very exciting news! He asked us to help him co-edit a medical journal. This is such a huge opportunity and we are grateful we will be able to bring attention to the suffering of CPP's.
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Episode 27 - 7/25/23
Show Notes
"Dr. Joshi writes regularly on his website, Daily
Remedy (www.daily-remedy.com), a trusted source
of editorialized healthcare content for both
patients and healthcare policy experts. He has
published articles on a variety of healthcare topics
in both peer-reviewed journals and trade publications. His legal writings include amicus curiae
briefs prepared for prominent federal healthcare
cases like the Supreme Court case, Ruan v. United
States."
Dr. Joshi recently appeared on our DPF Patreon live hangout and will address questions with Claudia and Bev on monthly recorded Q&A videos.
Please head on over to DPF Patreon page to see a 45-minute after the show video recording with Dr. Jay Joshi, Claudia, and Bev.
If you have a question you'd like Dr. Joshi to address on Patreon, please join Patreon and submit the question there.
Dr. Jay Joshi's contact info:
jjoshi45@gmail.com
daily-remedy.com
640-430-8024
Disclaimer - The information provided to you in this podcast episode is not to be considered medical or legal advice.
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Episode 26 - 7/7/23
Show notes
Claudia and Bev explain the OPAL Study that just came out of Australia.
This link from our website contains all of the up-to-date information and all of the links we mention in this episode. We are planning on doing a follow-up podcast episode with Dr. Chad Kollas, from DPF Board.
Disclaimer: The information contained in this podcast is not to be considered medical or legal advice
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Episode 25 - 7/4/23
Show Notes
Claudia and Bev interview Pharmacist Matt from Tik Tok.
In case you missed our first episode with Matt, here is the link.
Claudia, Matt, and Bev address the drug shortages. Bev interviews a patient who has been affected by this and reads posts from The Doctor Patient Forum Facebook page.
Matt is a community pharmacist who works at a local independent pharmacy.
If you'd like to watch an after-the-show video discussion with Pharmacist Matt, please go to the DPF Patreon page:
patreon.com/thedoctorpatientforum
Disclaimer - The information provided to you in this podcast episode is not to be considered medical or legal advice.
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Episode 24 -6/15/23
Show Notes
Claudia and Bev interview the amazing advocate, Beth Steckler. Her husband had a disease called PRSS1, and both of their children inherited it. Her daughter had a whipple procedure when she was just in first grade. Both of her children have been horribly abused in the health care system, which isn't uncommon in these days of opioid elimination.
Listen to Beth discuss the heartbreaking abuse her children continue to endure.
Beth's Twitter account - @purplemamabear
The name of the org that Beth helped to create - National Childhood Pancreatitis Foundation
Michigan Open Pediatric post-op opioid guidelines
How to advocate for a loved on in the hospital from The Doctor Patient Forum Website
If you'd like to watch an after the show video with Beth which includes an update about her daughter, please Head on over to our DPF Patreon page. patreon.com/thedoctorpatientforum
Disclaimer: The information that has been provided to you in this podcast is not to be considered legal or medical advice.
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Episode 23
Show Notes
Here is part 1, in case you missed it.
In this podcast, we discuss Tylenol for post-op pain. Is it actually as good as opioids? We interview a pain patient who was offered Tylenol only for breast cancer surgery.
We also discuss suicide due to pain.
Links discussed in this episode
- Debate with Dr. Singer and Dr. Fugh-Berman
- Article about this debate by Josh Bloom - A Surgeon And A Non-Practicing Anti-Opioid Zealot Walk Into A Bar: The Singer Fugh-Berman Debate
- You Take The Lavender, I'll Take The Morphine. More Anti-Opioid Nonsense.
- Dr. Kertesz's video with Dr. Fugh-Berman
In this podcast, Dr. Josh Bloom suggested patients send two articles to legislators about Tylenol instead of opioids.
- Op-ed article in USA Today by Dr. Singer and Dr. Bloom - Bureaucrats are telling your doctor how to treat pain. And patients suffer needlessly.
- Article by Dr. Josh Bloom - Tylenol Isn't So Safe, But At Least It Works, Right?
Other article by Dr. Josh Bloom about Tylenol
- Is Tylenol 'By Far The Most Dangerous Drug Ever Made?
- IV Tylenol As Good As Moose Urine For Post-Op Pain Control
- Oral And IV Tylenol Work *Equally* Well For Hip Replacement Pain - But Do They Work At All?
- Tylenol After Surgery? Why The Feds Make Patients Suffer Needless Pain (USA Today)
- Oral Vs. IV Tylenol In The Elderly: The 'Let's Kick Granny Down The Stairs' Study
- IV Tylenol Bombs For Post-Op Pain Control, In Randomized Controlled Trial
- Dr. Aric Huasknecht Responds to SG Jerome Adams' Tylenol Recommendation
Head on over to our DPF Patreon page. patreon.com/thedoctorpatientforum
Suicide hotline: 988 or 911
Disclaimer: The information that has been provided to you in this podcast is not to be considered legal or medical advice.
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Episode 22 - 5/3/23
Listen to part 1 of DPF's interview with Dr. Josh Bloom.
Why are so many pain patients put on Gabapentin? Does it work? Why are so many being prescribed Gabapentin all of a sudden? What are some of the possible side effects? Listen to some patient stories about Gabapentin.
Stay tuned for Part 2 with Josh Bloom.
Josh Bloom's bio: "Director of Chemical and Pharmaceutical Sciences
Dr. Josh Bloom earned a Ph.D. in organic chemistry from the University of Virginia, followed by postdoctoral training at the University of Pennsylvania.
He worked for more than two decades as a research chemist for Lederle Laboratories, which was acquired by Wyeth in 1994, which itself was acquired by Pfizer in 2009.
During this time he worked in a number of therapeutic areas, including diabetes and obesity, antimicrobial agents, HIV/AIDS, hepatitis C, and oncology. His group discovered the novel antibiotic Tygacil®, which was approved by the FDA for use against resistant bacterial infections in 2005.
He is the author of 25 patents, and 35 academic papers, including a chapter on new therapies for hepatitis C in Burger s Medicinal Chemistry, Drug Discovery and Development, 7th Edition (Wiley, 2010), and has given numerous public lectures on how the pharmaceutical industry really works.
Dr. Bloom joined the American Council on Science and Health in 2010 as ACSH s Director of Chemical and Pharmaceutical Sciences, and has written more than 20 op-eds, which have appeared in major publications, including The Wall Street Journal, Forbes, The New York Post, National Review Online and Medical Progress Today. Dr. Bloom is a regular contributor to Science 2.0, where he writes on topics related to the pharmaceutical industry, medicine and junk science.
In this episode, we included quotes from two ACSH podcasts. They are:
- Podcast: Neurontin — The Lousy Opioid Alternative; Twitter Censors ACSH
- Podcast: Tylenol After Surgery is Useless
Dr. Josh Bloom's articles about Gabapentin:
- The Devil You Know - Neurontin's Massive Flop As An Opioid Alternative
- Neurontin: The Darling Of The Anti-Opioid Crowd. But Does It Work?
- Neurontin: Over-Hyped And Underwhelming
Source of graph showing opioid prescribing is down to 1992 level
Other patient comments about Gabapentin experiences. Please join this FB group in order to view this post, since it is a closed group.
DPF's Patreon page announcement!
Disclaimer: The information that has been provided to you in this podcast is not to be considered legal or medical advice.
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Bonus Episode - 5/2/23
We are very excited to announce that DPF will be launching a Patreon page very soon!
What does this mean for everything we have offered like our website, podcast, and social media pages?
Everything will stay the same! We will continue to publish our regular DPF podcasts, our FB groups will all remain the same, and we are working on an updated website as we speak. Patreon will be an addition to what DPF offers.
What will be on the DPF Patreon page?
Some of the items you will get on Patreon are extra content - such as video podcasts, behind the scenes content, and coaching calls. You'll see daily posts of important studies, articles, podcasts, etc. There will also be monthly blog posts with important information that affects pain patients and providers.
What will Patreon allow DPF to do?
We recently had to turn down a speaking engagement due to lack of funding. Funding will allow us to take our org to the next level so we can continue to effect change for pain patients and providers.
How many tiers will DPF Patreon page have?
We are starting out with 3 affordable tiers.
When is it being launched?
June 1st is the official launch date, but we are hoping to launch even earlier!
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Episode 21 - 4/6/23
Link to Episode
Claudia and Bev discuss the updated CDC Guidelines with Dr. Sarah from Maryland. They answer the following questions:
- Is it an improvement?
- Are the 2022 Guidelines more or less restrictive?
- Will it help pain patients?
- Were limits from the 2016 Guidelines a misapplication or was it intentional?
- Did the CDC violate their own guidelines on how to create guidelines?
Links from discussion:
- Telebriefing for updated CDC Guidelines Nov 9, 2022
- CDC Guidelines for Prescribing Opioids for Chronic Pain - Dr. David Tauben UW TelePain - March 23, 2016
- Dr. Jane Ballantyne - TelePain - What the New CDC Guideline Mean for Prescribers - April 27, 2022
- Dr. Jane Ballantyne - Alternatives to Opioids - PDFNJ - March 30, 2023
- 2016 CDC Guidelines
- 2022 CDC Guidelines
- The Doctor Patient Forum's docket comment on 2022 CDC Guidelines
- Study by Dr. Jason Doctor - Effect of Prescriber Notifications on Patient's Fatal Overdose on Opioid Prescribing at 4-12 Months
Have you been force tapered or have you lost your pain provider? Please fill out this survey
Suicide hotline: 988 or 911
Disclaimer: The information that has been provided to you in this podcast is not to be considered legal or medical advice.
